Nebraska became the first and only state to create a Parkinson's disease registry as a result of 1996 legislation. The registry provides information about the incidence of the disease in Nebraska.
During the 2001 Legislative session, the law creating the Parkinson's Disease Registry was briefly repealed, however LB152 revived the registry and gave the DHHS the responsibility to continue all operations. Terminated in October 2004, the registry was reactivated February 1, 2006.
The Parkinson's Disease Registry Advisory Committee meets each November. Members of the Advisory Committee represent consumers, researchers and medical and pharmaceutical professionals.
Only new Parkinson's cases diagnosed since January 1, 1997, are required to be reported, but the registry also includes data on persons who had a diagnosis of Parkinson's prior to that time.