NCAA Requests
NCAA requests for Newborn Screening results for Hemoglobinopathy testing must be requested through your child's birthing facility. Under regulations, Title 181 NAC 2 governing screening of infants for inherited and congenital-on-set disease, Title 181 Chapter 2 006.04 The hospital or other submitter must place the screening test results in the newborn's medical record and appropriately retain those results for 25 years from the newborn's date of birth. Out-of-state requests should be handled the same way by contacting your child's birthing facility. Please note that facilities should furnish records upon request, however, requests may take up to two weeks or more depending on request volume. If there are issues related to obtaining the records from your child's birth facility, please call (402) 471-6558.
Disclaimer Statement
The screening tests are very efficient and give newborns the best chance to have the conditions found early. The tests are not diagnostic. They are a "screen" to find newborns that need more testing to see if they have certain conditions. However, like most lab tests, they cannot guarantee that every affected newborn will be identified, or that only newborns at higher risk of being affected will be found. There will be some "false positives" (newborns with a positive or abnormal screen result who are later found to have normal results), and there might be "false negatives" (affected newborns whose screening test results did not suggest a condition).
For Newborn Screening Report Requests
For parents and alternate caregivers, please contact your child's primary care provider.
For primary care providers, please fax Newborn Screening Report Requests to (402) 742-2332. For questions, please contact (402) 471-6558.
Newborn Screening is done for every baby born in Nebraska. A set of blood tests are done to find conditions that could be harmful to your child.
Even after a baby is born, there are usually no signs or symptoms, so parents cannot tell whether or not their baby may have a condition. This is why newborn screening is so important. It may find something you cannot see.
If a baby has one of these conditions and it is not found early, a baby could have seizures, physical disabilities, developmental disabilities, chronic illness, or may die.
Blood tests are needed to help find the conditions so treatment can begin early and prevent these effects.