Newborn Screening - Metabolic Foods

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What you need to know

Nebraska's Metabolic Foods Program helps people who have certain metabolic diseases. This program is authorized under Neb. Rev. Stat. §71-520. If you live in Nebraska and have a metabolic disease listed at 181 NAC 2 or Neb. Rev. Stat. §71-520, you may be eligible for reimbursement for pharmaceutically manufactured metabolic foods, w​hich may be needed for your diet as ordered and overseen by a metabolic practitioner. 

Pharmaceutically manufactured metabolic foods are special food products made to be low in protein for people with certain inherited metabolic disorders, known as inborn errors of metabolism (IEM). IEM is a group of genetic conditions that affect how your body processes food products. Some examples of IEM are phenylketonuria (PKU) and maple syrup urine disease. These foods are not usually found in regular grocery stores but are very important for managing these conditions when prescribed by your metabolic practitioner. They help people avoid organ damage, grow properly, and stay healthy. If you are eligible, you can receive up to $2000 each year to help pay for these special foods, which can prevent serious illness or disability.

If you have already been approved for this program but cannot afford to pay for the food first and wait for reimbursement, please call (402) 471-6588 to discuss possible options.