Nebraska Cancer Registry

The Nebraska Cancer Registry (NCR) was created by the Legislature in 1986 PDFrelevant sections in the statutes: 81-638, 81-642 through 81-650 and 81-665 through 81-675) and began collecting information in 1987.

The purpose of the registry is to document new cases of cancer in Nebraska, to analyze geographic patterns and long-term trends, and to plan and evaluate cancer control programs.  The registry also provides statistical and other information about cancer in Nebraska in response to specific requests.

Every cancer diagnosed in Nebraska is reported to the NCR, except for pre-cancerous cell types, benign polyps, basal and non-invasive or local squamous cell cancers of the skin, and most benign tumors.  However, since January 1, 2004, benign brain and other central nervous system cancers are now reportable to the NCR.   In most cases, information about new cancer cases is gathered by hospital-based tumor registrars.  In addition, physicians, osteopaths, pathology laboratories, and free-standing radiation and surgery centers also report any information that they have about persons with cancer.

The Nebraska Department of Health and Human Services manages the operation of the Nebraska Cancer Registry.  Financial support for the NCR comes from the State of Nebraska (through a portion of tobacco taxes) and, since 1994, the Centers for Disease Control and Prevention's National Program of Cancer Registries (NPCR).  As part of the NPCR, the NCR contributes its data to a national database that compiles information about cancer incidence, diagnosis, treatment, and survival throughout the United States.

The NCR's PDFannual report provides the most current data on cancer in Nebraska, with incidence and mortality statistics presented by gender, race, county of residence, and primary site.

The NCR website also provides links to a number of useful sites. Anyone who wants more information about a specific cancer type, the probabilities for developing cancer, prevention, treatment options, national statistics, available resources, and survivorship issues is encouraged to visit these sites.

PDFNCR brochure explains how the registry collects information. It is intended for providers, patients or anyone interested in the Nebraska Cancer Registry. Print copies can be obtained by calling (402) 471-2180, or by contacting the Nebraska Department of Health and Human Services by email.  Healthcare providers interested in the registry's reporting requirements and researchers who wish to find out how to get more specific information from the NCR should contact a person from the list below.

Contact
For GENERAL information: 
Michelle Hood or Janis Singleton
NE Dept of Health and Human Services
P.O. Box 95026
Lincoln, NE 68509-5026
Phone: (402) 471-2180
E-mail: DHHS.PublicHealthStatistics@nebraska.gov    
For WEB SITE information:
Jill Krause
NE Dept of Health and Human Services
P.O. Box 95026
Lincoln, NE 68509-5026
Phone: (402) 471-8582
E-mail:  DHHS.PublicHealthStatistics@nebraska.gov
For DATA REPORTING information:
Julie Nielsen, RHIT, LPN
8601 Dodge Street, Suite 112
Omaha, NE  68114
Phone: (402) 354-3393
E-mail: Julie.Nielsen@nmhs.org
For DATA REQUESTS:
Janis Singleton
NE Dept of Health and Human Services
P.O. Box 95026
Lincoln, NE 68509-5026
Phone: (402) 471-2180
E-Mail: DHHS.PublicHealthStatistics@nebraska.gov  

The Nebraska Cancer Registry is supported by Cooperative Agreement Grant Number U58DP000811
from the Centers for Disease Control and Prevention.
 

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