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Participants & Families Providers Resources Training Our Future DDD Regulations & HCBS Waivers
Eligibility for DD Services
Transitioning from High School at 21 years old
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Down Syndrome

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Participant & Family Page

This page serves as the hub for information for participants receiving DD services, their legal representatives, and their families. 
 
You also have full access to the Resources and Training pages. These pages are updated regularly with new information and opportunities.
 
HCBS Waivers Available for People with Developmental Disabilities - A quick look at the four Medicaid HCBS waivers that are available and may be appropriate for persons with Developmental Disabilities.   En Español aquí.
 
Nebraska Homestead Exemption - As a person who is eligible for DD services, you are eligible for property tax relief when you are a Nebraska homeowner. Information from the NE Department of Revenue. If you have questions about the program, you can call 402-453-8167 or Lorraine at 402-444-6617.
 Nebraska Lifespan Respite Network - This brochure describes Nebraska's respite provider infrastructure, basic information about responsibilities, family caregiver support, and instructions for accessing the online (or paper) orientation.
 
Participant Guide for Nebraska Medicaid HCBS Waivers - What to expect when you choose to receive services from a Medicaid HCBS waiver.online view  printable (print two-sided) en Español
 
Participant Guide for Self-Direction - How to work with independent providers.  En Español aquí.
 
Regulation Drafts for Public Comment
The Division of Developmental Disabilities (DD) is in the process of writing new regulations. We are not yet in an “official” public comment period, but are providing working drafts for stakeholder review on a public comment page. The working draft will continue to change as input is received. We want to ensure that you, our stakeholders, have maximum opportunity to review and make suggestions.
 
We want to improve our services in Nebraska. Your opinions and feedback can help! Nebraska is participating in a National Core Indicators (NCI) project survey that assesses the quality of life for adults receiving services from the Department of Health and Human Services’ Developmental Disabilities program.
NCI surveyors may be contacting you to participate in the survey. More details are available on these FAQs.
 
If you are an adult receiving DD services, or someone in your family receives DD services, read our announcement to find out more!
 
What are DD Services?
DD Services focus on helping eligible participants live the most independent lives possible. Goals are identified and habilitation is developed to teach participants skills to be employed, live as independently as possible, and access the community. 
 
The Division does not directly deliver services. DD provides funding and oversight of community-based providers. The oversight is completed by DD service coordination.
 
The Division does not provide cash payments or payments for room and board.
 
What do I Need to Know About Medicaid?  (en Español) - Information for DD applicants and participants briefly explaining what they need to know about Medicaid. Includes information about ABD, Share of Cost, MIWD, ENABLE accounts, and Ability to Pay.
 
How do I apply for DD services?
Information on applying is on our eligibility page.
 
Registry of Unmet Needs
Being determined eligible does not mean you will immediately receive services. DD services are not an entitlement.
 
There is not currently sufficient funds available for all requests. Once eligible, you will be mailed a form, which you can complete to be placed on the registry of unmet needs.
 
Services will be offered when funding becomes available. Funding is offered based on your date of request. The date of request can be as early as the date of eligibility application.
 
Level of Care
Funding for services will be based on your level of care and needs. A state worker will complete your assessment. Results are translated into your Individual Budget Amount (IBA). The IBA is your level of care as an annual amount. You can use this amount to purchase services 
 
DD Services Assessment & Budgeting Brochure - Learn a little about the process used to assess your needs and decide your budget for purchasing DD services. En Español aquí.
 
Planning Services
Your service coordinator or community coordinator specialist will help you plan your services. Planning will occur at scheduled meetings. Additional meetings can be held when needs change. Your DD coordinator can also participate in Individual Educational Planning (IEP) meetings at your request.
 
Individual Family Meeting (IFM)
This meeting is between you and your coordinator. If you have a guardian, he or she will also participate. You may invite family. At this meeting you discuss your needs and what types of services and supports can help you meet your goals.
 
Individual Support Plan (ISP) Team
You decide who is on your ISP team. It must include you, your coordinator, and any DD service providers you get services from. If you have a guardian, he or she is also on the team. You can invite any other family, friends, or organizations who support you.
 
Individual Support Plan (ISP) Meeting
This meeting is with your ISP team. There are at least two of these meetings each year. One is the main planning meeting. The second is a follow up to see your progress toward your goals. If your services and supports are not meeting your needs at any point in the year, any team member can call your coordinator to request a meeting.
 
 

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