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Services for Adults with Cystic Fibrosis, Hemophilia, and Sickle Cell Disease
What is the Genetically Handicapped Persons' Program?
The Genetically Handicapped Persons' Program continues the services provided by the Medically Handicapped Children’s Program for persons age 21 or older with cystic fibrosis, hemophilia, and sickle cell disease.
What services may be available through the Genetically Handicapped Persons' Program?
The program may fund the following service components:
- Initial intake and diagnostic evaluation by medical providers who are experts in the diagnosis and treatment of the particular genetic disease;
- Medical treatment;
- Prescription drugs;
- Hospital care;
- Surgical treatment;
- Rehabilitative services including reconstructive surgery;
- Appliances including upkeep, maintenance, and care;
- Physical therapy; and
- Occupational therapy.
Who may be eligible for this program?
Adults aged 21 and over who have the diagnoses of cystic fibrosis, hemophilia, or sickle cell disease.
More questions and answers about the Genetically Handicapped Persons’ Program
Contact someone who can answer questions about the Genetically Handicapped Persons’ Program or to apply for this service.
What providers for cystic fibrosis are covered through this program?
Covered providers are MHCP-contracted pulmonologists and the UNMC Cystic Fibrosis team.
I have sickle cell disease. What services will this program cover for me?
Inpatient hospital care under the supervision of an MHCP-contracted hematologist
- Outpatient evaluations with an MHCP-contracted hematologist;
- Lab work ordered by an MHCP-contracted hematologist; and
- Medication, as approved by the medical consultant.
Where can I read the HHS regulations about the Genetically Handicapped Persons’ Program?
Title 467 -- Title V Services for Medically Handicapped Children, Genetically Handicapped Persons' Program, and Supplemental Security Income Disabled Children's Program, Chapter 5 - the Genetically Handicapped Persons’ Program