Newborn Screening Information for Parents & families

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Lifespan Health
Public Health
 
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What would you like to do?

What you need to know

We encourage you to talk to your baby's doctor about the newborn screening tests. You can also call us at (402) 471-0374

 

    

Parent's Guide to Newborn Screening - English & other languages

  
  
PARENTS GUIDE TO NEWBORN SCREENING - ANUAK.pdfPARENTS GUIDE TO NEWBORN SCREENING - ANUAK
PARENTS GUIDE TO NEWBORN SCREENING - ARABIC.pdfPARENTS GUIDE TO NEWBORN SCREENING - ARABIC
PARENTS GUIDE TO NEWBORN SCREENING - BURMESE.pdfPARENTS GUIDE TO NEWBORN SCREENING - BURMESE
PARENTS GUIDE TO NEWBORN SCREENING - CHINESE.pdfPARENTS GUIDE TO NEWBORN SCREENING - CHINESE
PARENTS GUIDE TO NEWBORN SCREENING - DINKA.pdfPARENTS GUIDE TO NEWBORN SCREENING - DINKA
PARENTS GUIDE TO NEWBORN SCREENING - ENGLISH.pdfPARENTS GUIDE TO NEWBORN SCREENING - ENGLISH
PARENTS GUIDE TO NEWBORN SCREENING - FRENCH.pdfPARENTS GUIDE TO NEWBORN SCREENING - FRENCH
PARENTS GUIDE TO NEWBORN SCREENING - KAREN.pdfPARENTS GUIDE TO NEWBORN SCREENING - KAREN
PARENTS GUIDE TO NEWBORN SCREENING - KOREAN.pdfPARENTS GUIDE TO NEWBORN SCREENING - KOREAN
PARENTS GUIDE TO NEWBORN SCREENING - KURDISH.pdfPARENTS GUIDE TO NEWBORN SCREENING - KURDISH
PARENTS GUIDE TO NEWBORN SCREENING - NEPALI.pdfPARENTS GUIDE TO NEWBORN SCREENING - NEPALI
PARENTS GUIDE TO NEWBORN SCREENING - NUER.pdfPARENTS GUIDE TO NEWBORN SCREENING - NUER
PARENTS GUIDE TO NEWBORN SCREENING - RUSSIAN.pdfPARENTS GUIDE TO NEWBORN SCREENING - RUSSIAN
PARENTS GUIDE TO NEWBORN SCREENING - SOMALI.pdfPARENTS GUIDE TO NEWBORN SCREENING - SOMALI
PARENTS GUIDE TO NEWBORN SCREENING - SPANISH.pdfPARENTS GUIDE TO NEWBORN SCREENING - SPANISH
PARENTS GUIDE TO NEWBORN SCREENING - VIETNAMESE.pdfPARENTS GUIDE TO NEWBORN SCREENING - VIETNAMESE

Parent fact sheets

The following parent information sheets are provided to the baby's healthcare provider to give to parents when inconclusive or positive screen results are reported out and are intended to help parents understand a little about the possibility of their baby having one of the conditions, and what their next steps should be.  These are specific to the screen result.

  
  
BETA THALASSEMIA MAJOR.pdfBETA THALASSEMIA MAJOR
BIOTINIDASE DEFICIENCY INCONCLUSIVE RESULT.pdfBIOTINIDASE DEFICIENCY INCONCLUSIVE RESULT
BIOTINIDASE DEFICIENCY POSITIVE RESULT.pdfBIOTINIDASE DEFICIENCY POSITIVE RESULT
CONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL INCONCLUSIVE (SPANISH).pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL INCONCLUSIVE (SPANISH)
CONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL INCONCLUSIVE.pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL INCONCLUSIVE
CONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL POSITIVE RESULT (SPANISH).pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL POSITIVE RESULT (SPANISH)
CONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL POSITIVE RESULT.pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) INITIAL POSITIVE RESULT
CONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT INCONCLUSIVE (SPANISH).pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT INCONCLUSIVE (SPANISH)
CONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT INCONCLUSIVE.pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT INCONCLUSIVE
CONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT POSITIVE (SPANISH).pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT POSITIVE (SPANISH)
CONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT POSITIVE.pdfCONGENITAL ADRENAL HYPERPLASIA (CAH) REPEAT POSITIVE
CONGENITAL PRIMARY HYPOTHROIDISM (CPH) POSITIVE.pdfCONGENITAL PRIMARY HYPOTHROIDISM (CPH) POSITIVE
CONGENITAL PRIMARY HYPOTHYROIDISM (CPH) POSITIVE (SPANISH).pdfCONGENITAL PRIMARY HYPOTHYROIDISM (CPH) POSITIVE (SPANISH)
CONGENITAL PRIMARY HYPOTHYROIDISM (CPH) POSITIVE.pdfCONGENITAL PRIMARY HYPOTHYROIDISM (CPH) POSITIVE
CYSTIC FIBROSIS INITIAL INCONCLUSIVE (REFERRAL RECOMMENDED)(SPANISH).pdfCYSTIC FIBROSIS INITIAL INCONCLUSIVE (REFERRAL RECOMMENDED)(SPANISH)
CYSTIC FIBROSIS INITIAL INCONCLUSIVE (REFERRAL RECOMMENDED).pdfCYSTIC FIBROSIS INITIAL INCONCLUSIVE (REFERRAL RECOMMENDED)
CYSTIC FIBROSIS INITIAL INCONCLUSIVE (REPEAT RECOMMENDED)(SPANISH).pdfCYSTIC FIBROSIS INITIAL INCONCLUSIVE (REPEAT RECOMMENDED)(SPANISH)
CYSTIC FIBROSIS INITIAL INCONCLUSIVE (REPEAT RECOMMENDED).pdfCYSTIC FIBROSIS INITIAL INCONCLUSIVE (REPEAT RECOMMENDED)
CYSTIC FIBROSIS INITIAL POSITIVE.pdfCYSTIC FIBROSIS INITIAL POSITIVE
GALACTOSEMIA INCONCLUSIVE.pdfGALACTOSEMIA INCONCLUSIVE
GALACTOSEMIA POSITIVE.pdfGALACTOSEMIA POSITIVE
HEMOGLOBIN ABNORMAL (SPANISH).pdfHEMOGLOBIN ABNORMAL (SPANISH)
HEMOGLOBIN ABNORMAL.pdfHEMOGLOBIN ABNORMAL
HEMOGLOBIN C DISEASE - POSITIVE RESULT (SPANISH).pdfHEMOGLOBIN C DISEASE - POSITIVE RESULT (SPANISH)
HEMOGLOBIN C DISEASE - POSITIVE RESULT.pdfHEMOGLOBIN C DISEASE - POSITIVE RESULT
HEMOGLOBIN E DISEASE - POSITIVE RESULT.pdfHEMOGLOBIN E DISEASE - POSITIVE RESULT
MCAD (MEDIUM CHAIN ACYL CoA DEHYDROGENASE DEFICIENCY) POSITIVE.pdfMCAD (MEDIUM CHAIN ACYL CoA DEHYDROGENASE DEFICIENCY) POSITIVE
MPS 1 (MUCOPOLYSACCHARIDOSIS TYPE 1).pdfMPS 1 (MUCOPOLYSACCHARIDOSIS TYPE 1)
PKU (PHENYLKETONURIA) POSITIVE.pdfPKU (PHENYLKETONURIA) POSITIVE
POMPE DISEASE INCONCLUSIVE.pdfPOMPE DISEASE INCONCLUSIVE
SCID (SEVERE COMBINED IMMUNODEFICIENCY) ABNORMAL RESULT.pdfSCID (SEVERE COMBINED IMMUNODEFICIENCY) ABNORMAL RESULT
SCID (SEVERE COMBINED IMMUNODEFICIENCY) POSITIVE RESULT.pdfSCID (SEVERE COMBINED IMMUNODEFICIENCY) POSITIVE RESULT
SICKLE CELL BETA THALASSEMIA DISEASE POSITIVE RESULT (SPANISH).pdfSICKLE CELL BETA THALASSEMIA DISEASE POSITIVE RESULT (SPANISH)
SICKLE CELL BETA THALASSEMIA DISEASE POSITIVE RESULT.pdfSICKLE CELL BETA THALASSEMIA DISEASE POSITIVE RESULT
SICKLE CELL DISEASE - POSITIVE RESULTS (SPANISH).pdfSICKLE CELL DISEASE - POSITIVE RESULTS (SPANISH)
SICKLE CELL DISEASE - POSITIVE RESULTS.pdfSICKLE CELL DISEASE - POSITIVE RESULTS
SICKLE CELL HEMOGLOBIN C DISEASE (S-C DISEASE) POSITIVE RESULT (SPANISH).pdfSICKLE CELL HEMOGLOBIN C DISEASE (S-C DISEASE) POSITIVE RESULT (SPANISH)
SICKLE CELL HEMOGLOBIN C DISEASE (S-C DISEASE) POSITIVE RESULT.pdfSICKLE CELL HEMOGLOBIN C DISEASE (S-C DISEASE) POSITIVE RESULT
SICKLE CELL TRAIT (SPANISH).pdfSICKLE CELL TRAIT (SPANISH)
SICKLE CELL TRAIT.pdfSICKLE CELL TRAIT
X-ALD (X-LINKED ADRENOLEUKODYSTROPHY).pdfX-ALD (X-LINKED ADRENOLEUKODYSTROPHY)