The Nebraska Newborn Screening Advisory Committee advises the Program on matters related to population screening of newborns for congenital and inherited infant- and childhood-onset diseases/disorders or conditions
The Committee membership is determined by the Department's Chief Medical Officer which is comprised of a minimum of 15 and maximum of 25 stakeholders and representatives from but not limited to the following areas: Newborn and pediatric primary health care providers; medical and allied professionals from the sub-specialties associated with treatment for the disorders screened; clinical laboratorians; and consumers with technical, professional, or personal experience with newborn screening for congenital and inherited disorders, as well as representatives from other stakeholder organizations and agencies.
The Committee is responsible for reviewing the state of the art for newborn screening practices across the United States and recommending policy for appropriate adoption of newborn screening practices for the State of Nebraska. The Committee monitors quality assurance data for pre-analytic, analytic and post-analytic aspects of the newborn screening system; reviews evidence and makes recommendations on candidate conditions; and provides technical advice relevant to newborn screening practices and procedures.
The Advisory Committee meets quarterly in January, April, July, and October. Dates for upcoming public meetings can be found on the public meeting calendar .
Newborn Screening Statute - 71-519 Consent Statute - 71-551 CCHD Regulations/Statutes - Title 181 Chapter 10
Regulations Governing Screening of Infants for Inherited and Congenital Infant- and Childhood-Onset Diseases - Title 181 Chapter 2
Babies First Test American Academy of Pediatrics Secretary's Advisory Committee on Heritable Diseases in Newborns & Children March of Dimes National Center for Education in Maternal and Child Health National Organization for Rare Disorders New StepsGenetic Home Reference Save Babies Through Screening Foundation